Exhibits

Shwachman-Diamond Syndrome Foundation

PO Box 6723
Florence,  KY  41022

United States
https://www.shwachman-diamond.org
  • Booth: 2814

Shwachman-Diamond Syndrome Foundation has educated medical professionals and the public about this ultra rare disease since 1994.   We have provided education, answers, support and hope to SDS patients and their families.  We advocate for and fund research to improve treatment and curative therapies.  We reach our families and medical professionals through our website, Facebook page, newsletters, and medical conferences.

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