An organization led by & dedicated to the Alport community of patients & families Teens Ages 13-18 Read More Young Adults Ages 19-29 Read More Adults/Caregivers Ages 30+ / Parents of All Ages Read More April 2024 Newsletter Kidney Transplant Resource, Aortic Research Funding, and more! READ MORE Previous Next ALPORT CONNECT ’24: WAITLIST ONLY Contact ASF to join the ticket and travel assistance waitlists. READ MORE Previous Next JOIN THE ASF ALPORT PATIENT REGISTRY Enrollment is the most important research step we can take as a patient community. READ MORE Previous Next ASF LAUNCHES NEW NATURAL HISTORY STUDY Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE Previous Next Join Us: Direct Connect Meetings Learn about upcoming virtual events! READ MORE Previous Next FOR MEDICAL PROFESSIONALS Read More FOR RESEARCHERS & PHARMA INDUSTRY Read More CLINICAL TRIALS Learn about ongoing clinical trials open to Alport patients. Read More “We’re in your corner!” In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future. Follow @alportsyndromefndn In honor of #WorldKidneyDay and #AlportAwareness M As a #raredisease, #Alportsyndrome is commonly mis Watch our full Alport Connect 2023 highlights vide ASF’s patient and family meeting, Alport Connect We’re proud to participate in @asnkidney #Kidney Alport Connect 2023 was our largest in-person gath Earlier this morning, December and Nhalani West bo ASF Executive Director, Lisa Bonebrake, and ASF Re Load More Follow on Instagram