We can face MDS with strength and hope.
About the Global Pediatric MDS Initiative
The Global Pediatric MDS Initiative was launched in 2018 in an effort to bring physicians, scientist, patients and families together to cure pediatric MDS.
The initiative was birthed out of the need to advance science, improve treatments and provide education, resources and support to patients and families affected by pediatric MDS.
We realize that we are better together when we work collaboratively on a global scale.
Empowering you to thrive with MDS!
Watch the video to learn more on our mission and how we are here to help!
Our VISION
We desire to be the global leader in providing clinical excellence, research collaboration and family support for MDS patients around the world.
Our Mission
To connect physicians, scientists and patients worldwide through research collaboration, data sharing, education and family support to cure pediatric MDS.
Our Values
Our core values drive everything we do!
Compassion – Commitment – Integrity – Collaboration – Impact – Vision
Be Part of Supporting Community!
No one should have to go MDS alone. We have created these free resources in hopes for you to feel supported and guided through your journey!
Join our FREE Facebook Group Community!
We believe that no patient or family should ever walk this journey alone. That is why we created a designated patient and family support group. This is a closed and highly engaged Facebook Group community where people support each other. Join us now to get the support you need!
Free Resources and Programs
No one should have to go MDS alone. We have created these free resources in hopes for you to feel supported and guided through your journey!
Patient and Family Handbook
We are developing a patient and family handbook for you. This handbook will provide key information about pediatric MDS such as symptoms, diagnosis and treatment options.
The handbook will be available soon. Click on the link below to be the first to hear about it!
Pediatric MDS Quick Fact Sheet
Whether you are newly diagnosed pediatric MDS patient or want to share information with families and friends. This quick reference is a wonderful resource to get you started.
This is also a great educational tool for providers to give out to their pediatric MDS patients.
