United Porphyrias Association  

4800 Hampden Lane, Suite 3200
Bethesda,  MD  20814

United States
https://www.porphyria.org/

• Booth: Virtual

https://www.porphyria.org/

The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias. Connect with a Porphyria Specialist: Our Scientific Advisory Board is comprised of the foremost porphyria experts. We're happy to connect you to a porphyria specialist center for support. Please email info@porphyria.org or call 1-800-868-1292

 Press Releases

• Testing & Diagnosis of Porphyrias (Dec 06, 2022)
  https://www.porphyria.org/healthcare-professionals/testing-and-diagnosis/

• About Porphyria: Disorders In Depth (Dec 06, 2022)
  https://www.porphyria.org/healthcare-professionals/disorders-in-depth/