Salivary Gland Cancer UK

Salivary Gland Cancer (‘SGC’) UK’s central purpose is to further research into rare SGC’s, to push forward better treatment options and outcomes, for patients diagnosed with these rare cancers. It is a unique collaboration between a medical oncologist, Dr Robert Metcalf, and a patient advocate, Emma Kinloch, and was launched in May 2019. SGC has built an information and support network for anyone affected by SCG, as well as those treating or conducting research into those affected by these rare cancers.
RESEARCH AND BIOBANK: One of the overarching research aims of the charity is to better understand the biology of Adenoid Cystic Carcinoma (‘ACC’) and other rare SGC’s. Thereby furthering the work towards developing new treatments and targeted therapies. The Christie NHS Foundation Trust in Manchester, United Kingdom (‘UK’) has established a specialist hub that is focused on SGC’s, and patients are referred from all over the UK.
Dr Metcalf is building a biobank of tumour tissue donated by patients. This resource has already shown some real traction in better understanding the diseases. Results from this research, subject to appropriate consent and ethical agreements, can be shared with researchers internationally.
COMMUNITY AND EVENTS: As SGC are so rare, patients with SGC, their families and carers have often never met anyone else who has had the same experience as them. We meet this unmet need by providing information, news and opportunities at in person meetings, or online networking, in order to bring people together from around the globe to share experiences and support.
SGC UK’s dedicated community (which is growing all the time), meets three-to-four times per year. In addition to these events, and a newsletter, SGC UK has launched a podcast series addressing questions that are important to patients. Join us? For more information, visit www.salivaryglandcancer.uk. We are also on Twitter, Facebook and Instagram.... More Info Less Info