Shwachman-Diamond Syndrome Foundation (SDSF)
Founded in 1994, the Shwachman-Diamond Syndrome Foundation is a national, nonprofit, patient advocacy organization. Our goals are to advocate and support research towards a cure and improved treatment of all aspects of SDS, as well as to link families for emotional support and provide them with the most current research and medical information available. We also financially support SDS Scientific Congresses as well as provide Family Conferences.