Alport Syndrome Foundation, Inc.
The Alport Syndrome Foundation is a 501 (c) (3) non-profit organization that gives a voice to the Alport syndrome community of patients by building a network of support, raising awareness, fostering collaboration among international stakeholders, investing in research, hosting patient meetings, providing education, and advocating for those living with this rare genetic kidney disease.
Our Mission: to improve the lives of those affected by Alport Syndrome through education, empowerment, advocacy, and research.
Our GOAL: to conquer Alport Syndrome through effective treatments and a cure.